Here we are with part 4. I’m fresh from part 2 and 3 and this is getting harder to write. A lot harder than what I thought it would be walking into it. It’s such a personal and vulnerable experience that it feels just…I don’t know how to describe it. I feel naked. I think I will take a moment and come back to write part 4 when I’m ready.
February was hard. Most of the month I just…you know what I just realized? I’m writing this on the 31st of January 2019, EXACTLY ONE YEAR AFTER I WAS DIAGNOSED WITH PCOS! This just blew my mind. Here I am about to share what was going through my mind in February with the new diagnosis and it’s one year later. It feels like yesterday. These emotions are so fresh in my mind because I still feel them to this day. Oh boy, there is just so much I have to get off my chest…it’s difficult to get everything out. So much has happened that it’s pretty damn insane. There was something happening every single month and there wasn’t really a moment of oh let me catch my breath. Heck, I didn’t even scratch the service in the January update. Did I mention that we were looking for our house around this time? Oh, and that we found out my grandmother’s cancer is here to stay and there is nothing they can do for her? Yeah, that happened in January. I had a lot to chew on in February. A LOT. Honestly looking back, I’m like FUCK ME! That’s crazy! It was a theme ALL throughout 2018. It was intense things after intense things, EVERY SINGLE month. There wasn’t one month where nothing extreme happened. At least I know now with full confidence that if Onno and I can survive 2018 and still come out strong, we can get through ANYTHING. Our bond only got stronger through every punch to the gut. The really sad thing is, the theme that was 2018 is being carried through to 2019 and I’M FUCKING EXHAUSTED. I just need a break to catch my breath but life is just like NOPE. I’m getting off track and I still haven’t taken a break from writing this series. I’m overwhelmed just by thinking of all the crazy intense things that happened in 2018. But let’s get back to February. We will get back to the other months later.
A few months have passed since I wrote the first few batches of the infertility journey and I’m fresh of some really bad news. I have a lot to chew on but I trust that talking about this will help so here I am. After the fresh diagnosis of PCOS, the news about my grandmother and the stress that came with house hunting, I entered February 2018 wounded and fragile. I realized that this journey wasn’t something we could do on our own and we need the support of doctors. Spoiler alert: My experience with the doctors here when it comes to my infertility is fucked up. We first had to make an appointment at our normal doctor so he could refer us to the fertility section in the hospital. Once we had our referral we could make our first appointment. It had a 6 weeks waiting period and I realized that there wouldn’t be much I could do in the month of February. I spend the entire month just learning about PCOS and the trying to conceive journey when it came with women with PCOS. I watched a lot of YouTube videos, I bought PCOS books and spend every day just learning as much as I could. I absorbed all the information I could get and it was…hard. The fear of what might become my reality cut into my very soul.
March – July 2018
March was the start of everything. I started my supplements and we had our first appointment with a fertility doctor. It seemed incredibly promising. Promises were made and hope blossomed in my chest. I felt so giddy that they could see I had ovulated recently and I don’t know. I guess I thought that it was a sign that everything would be hunky dory and I will be pregnant in six months. Just like the doctor promised. He immediately arranged some blood tests so we could see what my hormones are doing and send me off with the prescription to start Clomid in my next cycle (1 – 6 April 2018). The blood tests came back and everything was pretty normal. My period started and I drank my first Clomid (50mg) pill. How it normally works is: they ask to see you two weeks later near your ovulation time to see if you’re ovulating or not and then they will run some blood tests at the end of the cycle to confirm the ovulation. The ultrasound looked promising and I had a few good follicles. I took my blood test the same day which wasn’t the right timing. There was simply a miscommunication about it and by the time we realized it, my period had already started. We never confirmed that first month if Clomid worked for me or not. March just wasn’t our month. It stung. Each and every month hurts. It chips something inside of you away. Something deep inside of you gets destroyed when you see that negative test. Something that can only be mended with your baby’s giggles. At our next appointment, they decided to put me on Clomid for another six months. I got my three months’ worth and they send me on my way. This is where the experience with the doctors came less than ideal. Firstly, they never arranged to redo the tests correctly to see if I was ovulating on Clomid or not. So, until today, we have no idea if Clomid (at least the 50mg) works on me or not. Secondly, we never saw the same doctor or the first doctor. So, there wasn’t one person in charge of our treatment so we were kind of forgotten about. I took my Clomid every month, hoped that it worked and cried when it didn’t. The one month that stung the most was the June one. My period was a bit on the late side and I planned to test on Onno’s birthday. I desperately wanted it to be positive. I arrived in the Netherlands permanently on Onno’s birthday the year prior, wouldn’t it just be perfect if we find out we’re pregnant then too? The timing would be perfect as we just moved in our first home. I wanted it so badly. I went downstairs to test while Onno waited in bed and I found blood in my panties. I cried, put the test away and crawled back into bed and sobbed in Onno’s arms. It was a hard blow. The next month I drank my last batch of Clomid and we started to discuss what we should do next. We have started the process in the city but it wouldn’t be realistic to always travel there. Why don’t we restart the process in our new town and just start all over again? So, instead of arranging the next three months of Clomid from the first hospital, we arranged to be transferred. There was a waiting period and, in that time, I just worked on the house and prepared myself emotionally for what’s next. Our fourth and final round of Clomid was unsuccessful and all we could do is just wait and hope the next doctor will take us seriously and give us a more hands-on approach. We were hopeful that our treatment would be better in the smaller town and we were more than excited to hear that the doctor they have on staff is specialized in PCOS and women trying to conceive with the condition.
What happened in that appointment broke my heart into so many tiny pieces. It was one of the hardest blows yet and it spun me into the darkest place I’ve ever been. We saw doctor 2 middle August and what seems to have become a common theme, I left her office in tears. She…what basically happened is they didn’t want to treat me until we hit the one-year mark. They will only help us in six months. It hit us hard. I couldn’t and I still can’t understand why they would send someone away when they were diagnosed with infertility at the very start of their journey. We both know my chances of conceiving naturally isn’t the best. I don’t have the normal number of chances in the year like normal couples. Why send me away for a year? Even though it hurt and destroyed something inside of me, I could accept the waiting period but…what angers me now is just how the appointment went. Firstly, I was under the impression that we made an appointment to see a specialist in PCOS and yet here is this woman basically telling me everything I’ve learned these last six months is wrong. According to her if you have your period, you ovulate every single month. THIS IS NOT TRUE. Women with PCOS can have what is considered a normal period and still not fucking ovulate. It was one of the first things I learned when I started looking into PCOS. Not only was this fact confirmed by all the books I’ve read, other ladies with PCOS, it was also confirmed by doctor 3. Doctor 2 had no fucking clue what she was talking about. Looking back now I was more upset about basically throwing all my hard work, all of my pain these last few months aside. It was irrelevant and wrong. Everything I know about PCOS is wrong according to the doctor. What I thought Clomid was doing was in fact not correct. The confusion and anger that all of the pain these last few months meant nothing added to the blow. It hurt more than hearing a doctor say that they won’t help you until you hit this mark in your journey. For the next two weeks after that appointment, my world just unraveled. Leading to that appointment my mental health wasn’t in the best place. The negative test month after month has started to chip away at me but that appointment, it changed everything. It had sent me to such a dark space that it terrified me. I needed help or I wouldn’t be the same at the end of this. I wouldn’t be able to survive.
September – November 2018
September was a turning point. I started the month by telling the world about my past and starting the process of coming to terms with everything that happened. To make peace and to heal. That as you all might know, send me through a crazy and intense journey. The first part of September I was just trying my best to piece all the pieces of me together so I could face my infertility journey head on with enough strength to get me through to the other side. We decided to wait out the one-year mark before we see a new doctor and hopefully finally get the treatment we deserve. We wanted to take it to another step and we did. We bought a medical device I heard so many PCOS ladies talk about, OvuSense.
*OvuSense is a true medical device which was developed by specialists for use in home and clinic. OvuSense is backed by over 50,000 cycles of use, 2 clinical trials, and 5 peer-reviewed publications, confirming the medical basis for core body temperature monitoring. OvuSense is used to track and predict the exact day of ovulation. Unlike any other monitor, OvuSense can alert you up to 24-hours before you ovulate based on your in-cycle data. Clinically proven to be correct 96% of the time, this gives you more time to try to get pregnant each cycle. As well as being the only monitor with live 24-hour advance prediction, OvuSense provides a 99% accurate full eight-day fertile window at the start of each cycle – helping you take back control of planning for pregnancy. OvuSense is fully certified, safe and effective. OvuSense is a class 2 medical device – with full regulatory approval in USA (510k), Europe (CE), Canada, and Australia. Why trust your tracking to anything else when you can use OvuSense, worry-free, knowing it has undergone rigorous testing? OvuSense measures what matters. Unlike BBT monitoring, OvuSense can monitor the true fluctuations of progesterone throughout the cycle. By measuring what matters with OvuSense you don’t need to use other devices at home for your fertility tracking. OvuSense can also help with diagnosis and monitoring medication. Only OvuSense helps with the diagnosis of your individual cycle characteristics and allows you to track how medication and/or supplements affect your cycle pattern, giving you and your doctor confidence that the treatment is working.*
OvuSense changed everything. It gave me back some of that control I desperately needed and it comforted me to know that all the data this medical device is gathering will help us conceive. The device gave us vital information. We saw that I ovulate incredibly late in my cycle, nearly a week after what we thought my fertility window was. Not only did the device show that I tend to ovulate very late in my cycle, but it also showed that my luteal phase might be too short. Something that’s not the best when it comes to supporting a pregnancy. It also showed that I DON’T ovulate every month. I will definitely write a review about OvuSense and go into full detail in a separate blog but the short story is: I would recommend it to my fellow trying to conceive cysters.
I’m going to round this blog off here just before the one-year mark in our infertility journey. What happened that month is big and this blog is already on the long side. I know that I didn’t really go into detail while I was just summarizing these last few months but I want to express how painful they were. It broke a piece of me inside and every month my heart broke a little more. It was the worst few months of my life and it made 2018 one of the most difficult times of my life. My worst nightmare has started to take shape and on most days I could barely breathe. It took everything in my power to fight every single day to get better and to heal. A fight that I still fight today. I wrote this poem in this time period. I hope it sums up everything.
Thank you so much for reading and I will see you in a click!
OvuSense website — https://www.ovusense.com/us/ — Information in italics* is straight from the OvuSense website.
PS. I’m sorry this blog is one day late. I was too ill to edit it on Tuesday and things just went downhill yesterday. It’s not much better now. Also, I’m sorry if there are any grammar/spelling mistakes. I really can’t focus.